I am a single mom raising a daughter with 3 life-threatening medical conditions. She was born with Aicardi Syndrome which includes epilepsy, physical & cognitive delays. She has had spinal fusion for scoliosis. She was recently diagnosed w/Hyperoxaluria (liver/kidneys) and Wolff Parkinson White Syndrome (heart defect).
Wednesday, September 22, 2010
My happy girl
This is a video of my sweet girl making her happy sounds! She even actually laughs in this video! For some reason she seems to always look up when she smiles really big (you'll see that in the video). These are the things that I hope she doesn't lose the ability to do after her spine surgery! I love her so much!!!!
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Dakotah
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