I am a single mom raising a daughter with 3 life-threatening medical conditions. She was born with Aicardi Syndrome which includes epilepsy, physical & cognitive delays. She has had spinal fusion for scoliosis. She was recently diagnosed w/Hyperoxaluria (liver/kidneys) and Wolff Parkinson White Syndrome (heart defect).
Friday, September 17, 2010
Birthdays
When Dakotah was born the doctors said that the prognosis wasn't good, she wouldn't live long and what years she did live would not be good. Well, 12 years later I am happy to say that while we've definitely had bumps in the road (some small, some large) that she is still with me. As she gets older, birthdays become more and more bittersweet for me. I celebrate that she has lived another year, yet I wonder if that will be the last birthday. I have added a slideshow at the top of my blog of pictures of her from most of her birthdays through her most recent 12th birthday.
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