I am a single mom raising a daughter with 3 life-threatening medical conditions. She was born with Aicardi Syndrome which includes epilepsy, physical & cognitive delays. She has had spinal fusion for scoliosis. She was recently diagnosed w/Hyperoxaluria (liver/kidneys) and Wolff Parkinson White Syndrome (heart defect).
Wednesday, May 12, 2010
Noisy Progress
So, I got some good news today from Dakotah's teacher. She is being much more vocal now. She has found a new pitch and volume level in her voice and really, really likes to hear herself. She started doing it for me last week and now it's carried over to school. It's funny because her teacher asked me this morning if I thought she was having a new kind of seizure - I said, "No, I think she just likes to hear herself." It's so funny because she really screams but it is a good scream and it's progress. It's noisy progress (and I have to turn up the volume on the t.v. now) but it's PROGRESS!!!!
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