Hi everyone! I just wanted to make sure everyone knows that there is no minimum amount that can be donated to Dakotah's paypal account (dollar4dakotah@gmail.com). People with a paypal account are able to give a gift to her without any fees!
If enough people pass the word/cause along and enough donate just $1 to her account, it will add up!!!! If we don't get this help, I don't know what we will do or how we will make it. I am going to have so much stress worrying about her making it through this surgery and all the recovery it requires that I'm hoping not to have worry too much about the hospital copay, insurance premiums, and regular bills. (Even though I have to take a leave of absence from teaching to be home with her, the bill collectors won't be taking one.)
I am TRULY grateful to EVERYONE!!! Even if you are unable to donate, will you please pass along her paypal account information and my blog information to your family and friends, Facebook contacts, Twitter followers (my username on Twitter is jenscrmom06)?
(This was taken a few years ago, but the message is true today!!)
Thank you so much for all your support and prayers!
XO
Jen
I am a single mom raising a daughter with 3 life-threatening medical conditions. She was born with Aicardi Syndrome which includes epilepsy, physical & cognitive delays. She has had spinal fusion for scoliosis. She was recently diagnosed w/Hyperoxaluria (liver/kidneys) and Wolff Parkinson White Syndrome (heart defect).
Saturday, September 25, 2010
Wednesday, September 22, 2010
My happy girl
This is a video of my sweet girl making her happy sounds! She even actually laughs in this video! For some reason she seems to always look up when she smiles really big (you'll see that in the video). These are the things that I hope she doesn't lose the ability to do after her spine surgery! I love her so much!!!!
Tuesday, September 21, 2010
Update on Dollar 4 Dakotah
I am happy to say that we have received $45 in the Dollar 4 Dakotah paypal account and then another $20 in the mail. If we can just keep spreading the word, I know it will add up. If we get enough people to donate $1.00 each, it will make a HUGE difference!!!!
Also, if you are on twitter, will you please tweet Ellen Degeneres the blog address - http://www.singlemom2preciousgirl.blogspot.com/? Her twitter name is @theellenshow. Also, she does have a fan page on f/b and people can post a link there as well. I just pray every day that she'll see our story and she'll choose us this year to be one of the families that she helps!!!!
Thanks again for all your support!!!! It really, really means a lot to me!
XOXO
Also, if you are on twitter, will you please tweet Ellen Degeneres the blog address - http://www.singlemom2preciousgirl.blogspot.com/? Her twitter name is @theellenshow. Also, she does have a fan page on f/b and people can post a link there as well. I just pray every day that she'll see our story and she'll choose us this year to be one of the families that she helps!!!!
Thanks again for all your support!!!! It really, really means a lot to me!
XOXO
Sunday, September 19, 2010
Today was a good day
I don't want this blog to be all negative. Today was a good day. I got the yard mowed and my closet cleaned out. Most importantly I found a twin mattress at a yard sale for my bed in Dakotah's room (I will be bunking with her after her surgery). I'm so relieved that I have that all ready.
Another very nice thing happened to me today. A few years ago I met Audra. She is a massage therapist and during my first massage with her (a gift from someone) we started talking and discovered that we both have children with rare syndromes. She has a son. We have become very good friends over the years. Well, she sent me a msg on Facebook today that I can come get a massage on her!!! I am sooo excited. I've been so stressed out lately that I really need it.
I also got the posters made and the donation "can" made for the walk that we are having on the 28th. I hope you all have a wonderful week this week!!!!
Another very nice thing happened to me today. A few years ago I met Audra. She is a massage therapist and during my first massage with her (a gift from someone) we started talking and discovered that we both have children with rare syndromes. She has a son. We have become very good friends over the years. Well, she sent me a msg on Facebook today that I can come get a massage on her!!! I am sooo excited. I've been so stressed out lately that I really need it.
I also got the posters made and the donation "can" made for the walk that we are having on the 28th. I hope you all have a wonderful week this week!!!!
Friday, September 17, 2010
Important information about donations
Hi everyone! I need to let you know some information I found out today regarding donations for "Dollar 4 Dakotah". Unfortunately, you won't be able to claim them on your taxes because I am just a mom (with the help of "VOLUNTEERS") trying to raise money to cover medical and living expenses due to being out of work because of Dakotah's surgery. Per the IRS, "Only donations to qualified organizations are tax-deductible" and Dollar 4 Dakotah is not a qualified charitable organization. It is just a name I came up with for the cause.
So, any donations you make to our cause are just out of the goodness of your heart! Please know that I understand if this deters any of you from helping. If you still would like to help, I was able to open a bank account in Dakotah's name today to link to her paypal. Again, the paypal address is dollar4dakotah@gmail.com. If you don't want to do the donation through paypal, you can mail a check to us. Please email me at scrmom6@gmail.com and I will give you my mailing address.
Again, I am very, very sorry that you won't be able to claim on your taxes those donations made specificially for Dakotah!
XOXO
So, any donations you make to our cause are just out of the goodness of your heart! Please know that I understand if this deters any of you from helping. If you still would like to help, I was able to open a bank account in Dakotah's name today to link to her paypal. Again, the paypal address is dollar4dakotah@gmail.com. If you don't want to do the donation through paypal, you can mail a check to us. Please email me at scrmom6@gmail.com and I will give you my mailing address.
Again, I am very, very sorry that you won't be able to claim on your taxes those donations made specificially for Dakotah!
XOXO
THANK YOU!!!!
There are not enough words to express my gratitute to EVERYONE for your support!!! I am so grateful and blessed that people are coming together to help us! Some I know, some I don't know but am getting to know through this whole process. It amazes me at the love and support that complete strangers are giving to Dakotah and I.
Many are asking how to help - I have set up a paypal account for Dakotah and you are able to donate via a Personal gift using her email address - dollar4dakotah@gmail.com Also, if you are on twitter, please help us by sending Ellen Degeneres the link to the blog (http://singlemom2preciousgirl.blogspot.com/) Ellen's twitter name is @theellenshow.
Thank you again and know that I love all of you and consider you all blessings in my life!!!!
Many are asking how to help - I have set up a paypal account for Dakotah and you are able to donate via a Personal gift using her email address - dollar4dakotah@gmail.com Also, if you are on twitter, please help us by sending Ellen Degeneres the link to the blog (http://singlemom2preciousgirl.blogspot.com/) Ellen's twitter name is @theellenshow.
Thank you again and know that I love all of you and consider you all blessings in my life!!!!
Birthdays
When Dakotah was born the doctors said that the prognosis wasn't good, she wouldn't live long and what years she did live would not be good. Well, 12 years later I am happy to say that while we've definitely had bumps in the road (some small, some large) that she is still with me. As she gets older, birthdays become more and more bittersweet for me. I celebrate that she has lived another year, yet I wonder if that will be the last birthday. I have added a slideshow at the top of my blog of pictures of her from most of her birthdays through her most recent 12th birthday.
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